1in25.co

1in25.co Supporting Epilepsy families. Creating awareness. Contributing to Epilepsy research.

Most people will witness a seizure at some point in their lives.Yet many people still don't know the basics of seizure f...
09/06/2026

Most people will witness a seizure at some point in their lives.

Yet many people still don't know the basics of seizure first aid.

The truth is, seizure first aid is simple.

Protect.
Time.
Stay.
Recover.

A few simple actions can help keep someone safe, reduce panic, and provide support during one of the most vulnerable moments of their day.

That's why we created our Seizure First Aid tee.

Not just as a shirt, but as a conversation starter.

A way to raise awareness.
A way to spark curiosity.
A way to remind people that seizure first aid is a skill worth having.

Because epilepsy affects 1 in 25 people, but seizure first aid benefits everyone.

Available in men's and women's styles at https://1in25.co/

đź’ś Every purchase helps support our work raising awareness, advocating for better support, and building a more informed and inclusive community for people living with epilepsy.

What's your superpower?

If a child stopped breathing because of an allergic reaction, would their teacher know what to do?Most of us would expec...
07/06/2026

If a child stopped breathing because of an allergic reaction, would their teacher know what to do?

Most of us would expect the answer to be yes.

If a child had a severe asthma attack, would their teacher know what to do?

Again, we'd hope so.

But what about a seizure?

Would every teacher, educator, childcare worker, support worker, sports coach, relief teacher, university lecturer, and after-school care worker know how to respond calmly and confidently?

We're not asking this to criticise educators. Quite the opposite.

Teachers and education professionals are asked to carry enormous responsibility. They support children with diverse medical, physical and emotional needs every single day. We believe they deserve the training and confidence to respond to seizures too.

Because epilepsy is not rare.

Because seizures happen in classrooms, playgrounds, childcare centres, sporting fields and school camps.

Because the right response can reduce panic, prevent injury, and potentially save a life.

And because students living with epilepsy deserve the same level of preparedness, safety and understanding afforded to students with other medical conditions.

At 1IN25, we believe seizure first aid training should be available, accessible and consistent across all educational settings.

What do you think?

If you're a parent, educator, student, support worker or person living with epilepsy, we'd love to hear your perspective below.

👇 Has your school, childcare centre, university or workplace provided seizure first aid training?

01/06/2026

Happy Birthday 🎉💜

Thank you for everything you do for our community, our family, and all the families living with epilepsy. Your passion, dedication, and heart inspire so many people.

We wouldn’t be where we are today without you. 💜💜

Last chance to add your voice to the NDIS inquiry.We’re putting together a combined submission to share the experiences ...
27/05/2026

Last chance to add your voice to the NDIS inquiry.

We’re putting together a combined submission to share the experiences of epilepsy families with the NDIS.

Survey link in our bio. Closing tomorrow 9am so I have time to put our submission together (final submissions are due to parliament on Friday).

If you are living with epilepsy, caring for someone with, or supporting as a therapist, teacher, support worker etc - we need your voice.

We cannot allow any decisions to be made without first hearing from the epilepsy community. We already fall through the cracks far too often.

Please share.Right now, another senate inquiry that affects the epilepsy community is accepting submissions.The deadline...
19/05/2026

Please share.

Right now, another senate inquiry that affects the epilepsy community is accepting submissions.

The deadline is next Friday (29 May).

We can’t allow decisions on the NDIS to be made without our voices being heard and considered.

If you live with epilepsy, and have an NDIS story, please complete our survey. You can share as much or as little as you like. And you can remain anonymous.

It’s us again 💜We know… we’ve only just submitted a document so important it could help shape the future of epilepsy sup...
17/05/2026

It’s us again 💜

We know… we’ve only just submitted a document so important it could help shape the future of epilepsy support in Australia... and now we’re back asking for your voices once more.

A new Senate Inquiry is currently looking into major proposed changes to the NDIS.

At this stage, there’s still uncertainty around exactly how these changes may affect epilepsy families. But one thing is clear:

We don’t want decisions being made about our community without our voices, experiences, and realities being heard and considered.

If you:

- currently receive NDIS support
- are in the process of applying
- have been denied access
- have had supports reduced
- or have struggled to navigate the system because of epilepsy…

…we would love you to share your experience with us.

We’re preparing a community-led submission to ensure epilepsy families are represented in this conversation.

Not statistics.
Real lives.
Real families.
Real impact.

The survey may take around 20–30 minutes to complete, and you can share as much or as little as you feel comfortable with. Anonymous responses are welcome too.

This is about making sure epilepsy families are not overlooked.

đź”— Link in bio to share your story. Please complete by Wednesday 27 May because final submissions are due 29 May.

Also, please share this post so we can reach as many epilepsy families as possible đź’ś

This has been a huge week and we still have so much to process and mentally unpack.Rafa ran a really long way with the i...
15/05/2026

This has been a huge week and we still have so much to process and mentally unpack.

Rafa ran a really long way with the invaluable support of his crew, and messages of encouragement from all over the world.

I, Mel, was at home with the girls, keeping their routine as best I could as a solo parent, and running remote operations of the project and social media.

We unfortunately didn’t get any media coverage of the run, despite how hard we (and many others in our circles) tried to connect with TV, radio and newspapers. Thank you to all who tried.

It kind of echoes the theme of epilepsy being an invisible condition. And I hope we were able to increase visibility just a little through this project. Which was our aim.

We thankfully had a videographer on board with us filming the entire thing and we can’t wait to have a finished product to share with the world. To make epilepsy, and the pain and struggles that go hand in hand, visible.

The deadline for submissions to the epilepsy senate inquiry is today, our submission is in, alongside 110 others, and we hope for some positive changes to come from this. The report is due September 10 so we hold our breaths until then 🙏

It’s not too late to donate to the project (donations are tax deductible): givenow.com.au/rtp
And we’ve also got fancy RTP tees available: https://order.screenlab.co/merch-store/1in25/

Thank you to all who have shared and engaged with our posts, donated, bought a tee, send words of encouragement, shared your epilepsy story, and supported in other ways. We are immensely grateful. Thank you for believing in us.

What an honour it was to be welcomed by Jordon Steele-John today in the Marble Foyer at Parliament House.We shared the s...
14/05/2026

What an honour it was to be welcomed by Jordon Steele-John today in the Marble Foyer at Parliament House.

We shared the story behind 1IN25 Foundation, the work being done to support epilepsy families, and our Run to Parliament — all in the hope of putting more eyes, hearts and action on epilepsy in Australia.

Thank you for your time, kindness and advocacy. đź’ś

We made it! 7 days, 325+ kms. A roller coaster of emotions. And a community that carried us through!From the Sydney Oper...
14/05/2026

We made it! 7 days, 325+ kms. A roller coaster of emotions. And a community that carried us through!

From the Sydney Opera House to Parliament House, we did it.

Now it’s time to hand deliver our submission for the epilepsy senate inquiry and hope for some positive changes to come from it.

For anyone living with epilepsy, caring for someone with epilepsy, assisting or supporting someone with epilepsy, it’s not too late to share your voice.

Submissions are due tomorrow (15 May) and every voice will be heard: https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia

(Or Google “epilepsy in Australia senate inquiry”)

We need more support and we are very hopeful this inquiry will deliver it.

Fun fact: During the 7 day run Rafa is burning an additional 4000-5000 calories per day. Meaning in a week an extra 30,0...
13/05/2026

Fun fact: During the 7 day run Rafa is burning an additional 4000-5000 calories per day.

Meaning in a week an extra 30,000+ calories will be burnt.

That’s roughly the equivalent of 100 cheeseburgers!

Or around 14 cheeseburgers a day!

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