02/24/2017
Just wanted to say hello because it's been a while to say the least since I have posted anything on my page. There has been lots going on in my life so the page has remained quiet. We first started to notice that our little boy who is fifteen months of deliciousness wasn't meeting his mile stones and opening his hands for extended amounts of time. I started asking the doctor about this but she didn't seem to concerned bc lots of babies meet their mile stones later and that I shouldn't be concerned but I couldn't shake the feeling that something just wasn't right. So at a year we took our Beckett to see a peditrician who showed concern about his muscle tone and told us that he was concerned that our baby may have a muscular or nerve disease. There is nothing quite like hearing those words to make your heart drop and feel fear so immensely. So our next step was off to the neurologist to get testing done along with blood test and physio. After meeting with the neurologist and doing an emg they discovered some weakness in his muscles and we got told that our beautiful little boy may have spinal muscular atrophy. For anyone who knows this disease knows these are the words two parents do not want to hear -----ever. This time in my life has been the hardest I have ever gone through because I was battling postpartum anxiety at the same time and try remaining calm when your precious baby may have a disease as the above, dr death google doesn't make it easier either. So for a month and a half my husband and I waited to hear back from the neurologist to see if we would have to fight that monster. I did what any mom would do during that time, prayed, called every church I could to put my son in the prayer list, got angry, cried, by through it all clung to god and that he would not leave us or forsake us---these were dark days, it makes me tear up just reflecting on it. Then the phone rang on Valentine's Day and I sat there staring at it frozen in fear---Josh wasn't here, maybe if I didn't answer it all this hell would go away---but I picked it up and put it to my ear and said "yes!" She asked me if this was Becketts mom and I answered and then her voiced cracked and she said through her own tears---"he doesn't have it Bekkah, he doesn't have spinal muscular atrophy!" I let out a sound of joy like I have never heard before with such relief and kept saying thank you god thank you! That little boy didn't know what was happening to him with all the kisses and hugs and tears of happiness from his family---it is the best day of my life February 14/17. So what I have learned from this is that during the dark times in our lives god does get us through it to comfort and guide us. We still have a journey with our Beckett but the worst is behind us and no matter what they tell us our son has we will be ready for it because we are a team. Beckett has three other older siblings that are crazy about him as well so there is a lot of love that little boy gets everyday. I am learning that the most important thing in my life is to have god in our lives and to spend time with my precious family. So where does this leave The Coral Barn? Well there is going to be a few changes....I will still be selling nooks occasionally at different markets but I will be starting to make my own children's apparel and changing my business to birch kids clothing and posting new products when I can. Right now my focus has to be on my family as we continue to go on this journey with Beckett but it will be with hope, grace, and love. So thank you all for the years you have been with me and I wish you the very best day today.❤️️
