09/06/2026
This quote feels very apt today. Today marks the 8 year anniversary of Evie’s diagnosis. Today we just need to spend time together. To acknowledge all that she’s been through, all that she’s conquered in her young life. I wish that I could say end of treatment means the end of worry. To be able to close that chapter of our lives. The worry lessens. The memories are still strong. Evie was 11 when her life changed beyond all recognition. A childhood innocence that ended. A time when she should have started to enjoy some freedom, to be looking forward to a new chapter of “big school”. That wonderful summer when you’re the “big kids” at primary- who everyone looks up to. Instead she spent her last few weeks of school in and out of hospital. She was old enough to know that she was seriously ill, but perhaps too young to deal with the emotional impact of it all. 2 1/2 years of treatment, pneumonia and then Covid - it’s not been an easy time. Once treatment is done you end up free falling in fear without the comfort of the amazing medical teams holding you up. Unless you’ve been there I don’t think (thankfully for those who haven’t) that you can possibly have any understanding of how it is. When you’re an adult who is going through treatment you are surrounded by people who have experience of someone close fighting this awful disease. When you’re 11 and going into your teens, you don’t have that level of understanding (and nor should you). I’m not sure why I’m writing all of this. I guess I just want people to reach out to those who are going through treatment. Every day I hear of more people getting sick. People I hold really dear. Don’t give up on them. Keep checking in. It’s a long road …. Sending love to all of those who are dealing with this right now. You deserve all the love and support.
