25/03/2026
Isaac is now 8 months old and remains an inpatient at Great Ormond Street Hospital. Plans are being made for his discharge in the near future, however this will only be possible with a 24/7 home nursing package in place, as it has been deemed unsafe for him to be at home without continuous clinical support.
Due to the nature of Isaac’s condition and the speed at which his pain episodes can escalate, either his mother or father must be present at all times to respond in an emergency. As a result, both parents remain unable to return to work.
In preparation for Isaac’s discharge, the family are having to significantly adapt their current living arrangements. Their bedroom is being converted into a safe and appropriate clinical space for Isaac and his care team.
This means his parents will need to sleep in the living room, which is far from ideal, but currently there is no alternative available within the constraints of their home.
Hi, My name is Ephi and I have setup this GoFundMe page to help support baby Isaac… Ephi Raymond needs your support for Help Support Baby Isaac and His Family