08/29/2023
My Lupus walk story. Lupus is an autoimmune disease that will attack the healthy tissues of one’s body. The stages are vast and ranges are wide. After months of chronic fatigue, severe pain in all my joint, excruciating pain in my limbs causing me to become completely paralyzed from the neck and below. They did lots testing from a RA specialist. I got a corrected diagnosis. I started walking better and stopped using my cane. However, I still suffer a great deal of flare ups, pain, stiffness, stomach problems and memory loss. A person with Lupus suffers from chronic joint pain, stiffness, fatigue, fevers, rashes, sensitivity to light and sun, macular degeneration - big word for vision loss, eye pain, headaches, malaise, swelling, mouth dryness, mouth sores, jaw pain, brain fogs, memory loss, disorientation, nasal sores, and when in severe cases can cause strokes, heart attacks and kidney failure. Additionally, common Lupus warriors have anxiety and depression from dealing with the disease, your plan of care, your medication- which can kill babies-& save lives. The constant battle within myself gives me so much hopelessness that I almost give up daily yet find a will. No cure. Not a virus. Not Cancer. It’s constantly in stealth mode. I’m tiresome. I get weak. I debate if I’m worthy to live yet maybe it’s worthy to die. For something that says it can trim 10% of life’s expectancy NOW depending on how well you take care of yourself. Not to mention I also have Rheumatoid Arthritis another autoimmune disease. So let’s do the math, that’s adds another 10-30% of my life expectancy. The women in my family barely make it to 80. Long term goal live to be 75. Big year for me turning 40. That only gives me 35 more strong ones left. Praying for the best. It’s so hard to sleep when I am constantly thinking about everything I need to get done. Life is too short guys and gals. Live it to the fullest. Always remember that life is worth living. The air we breathe, the wind that brushes up against us, the water that surrounds us, the fire within us. I care for all things including human beings. I wear purple as a true sign of my loyalty. I am and will continue to be a Lupus Warrior. There’s my story in a nutshell. And on that note it’s that time of the year. If you didn’t know we are approaching the Lupus Awareness month - September. I invite all to come out to an event that truly is going to enlighten your life and day! We do wear our hearts on our sleeves literally sometimes we have no control. 😄😄
https://support.lupus.org/site/TR/WTELN/General?pg=entry&fr_id=1951&%3Futm_source=facebook&utm_medium=cpc&utm_campaign=is-lupuswalk&s_src=cpc&s_subsrc=fb-is-lupuswalk&fbclid=IwAR2XWz0a1GEraUB8kJGPWz6X9fv4vdjx0iYvjJZQUGVRZlgnM8dceWKjobM_aem_AWXgXWAN03AQwsXBMLkJqgHo13VbS4AJ4itiQjR6oWF7N0V1Vqwk0hLYOpGVR0xIpT8
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