07/22/2026
BREAKING RADIO SILENCE 😉
Hey folks! I’m so sorry that I’ve basically disappeared for months. There’s a reason. Since the middle of February, my life has taken a turner for the better, but also the worst, and definitely for the weird lol. Sometimes the worst things happen during the best times of our lives. And I firmly believe that goodness acts as a cushion for those very hard times.
After my vision went double very suddenly in February, I was hospitalized for almost a week.
Test after test was done, including a lumbar puncture (big ouch) and I was diagnosed with Relapsing Remitting Multiple Sclerosis. It requires aggressive treatment. Thankfully the treatment will prevent future MS damage. It won’t fix the damage already done, but it will basically stop the progression.
So I’m beyond thankful for this treatment.
The tradeoff for it, however, is my immune system.
But it’s ok! Because I can adapt and am adapting.
MS was something I never could have guessed would be a part of my life.
I never saw myself ever becoming immunocompromised.
I never saw myself fighting for my vision.
I never saw myself needing mobility tools (from time to time) because my balance is unpredictable and the right side of my body is weak.
So some things are harder, things I love so much.
I can still explore, kayak, swim, and search for treasure. But it is much harder. And I have to take a lot of factors into account, like my exhaustion/vision/balance/weakness problems. I just have to choose how I spend my energy.
All I know is that MS won’t win. I won’t let it. A couple of days ago, I was in NYC and walked 13,000+ steps on one of those days. That’s a win in my book.
Yes, some days are harder than others.
However, the scale is starting to tip.
Because now I’m having more good days than bad days. And while the double vision is still a mess, it is still slowly improving.
My story is far far from over!
It’s only just beginning.
And I’m absolutely sure my best adventures are still to come.
Accept. Adapt. Keep the faith.
And stay curious!
💙 AmericanMudlark