05/16/2024
Please help us save my sissys life 🙏🏼❤️🙏🏼
If you can please read all of the details, help us by sharing…it only takes one person…one person to see this that can make a difference and help us fight for the most beautiful soul that I’m lucky to call my sissy
Please share!
Posted by my sister in law Jennifer Schantz Mangeney
🆘🆘 ‼️Friends, I need your help‼️ I’ve been tasked with finding a Glioblastoma clinical trial that is currently enrolling for Joe’s sister Diane. Time is of the essence as the tumor has recently significantly progressed in a short amount of time. I know I have many friends in healthcare and, those that are not, are very smart and resourceful. If you have any leads or contacts, please share with me. Please also share this post because you never know who might see this and have life saving information to share. 🆘🆘🙏
Diane’s glioblastoma tumor is an inoperable unmethylated MGMT tumor exhibiting rare tumor characteristics and mutations which only account for 1-2% of glioblastomas. This tumor type disqualifies her from many clinical trials but may also qualify her for others. She has also had a previous craniotomy further limiting trial options.
Here are some important specific characteristics of her unmethylated MGMT Glioblastoma to share:
•Unmethylated MGMT✅
•Wild type✅
•Heterogeneous✅
•Multifocal✅
•Epitheloid ✅
•Rare mutations NTRK2, PTEN, SETD2✅
•Progressive✅
•Inoperable✅
•Previous craniotomy✅
Any and all information is appreciated. Time is of the essence. Ideally, we would prefer a clinical trial in NC, FL, or IL where Diane has family that can help with her care but,ultimately, we will gladly accept help anywhere.
Thank you so much for any information or even just sharing this post in the hopes that the right person will see it. ❤️ Prayers are also appreciated. 🙏🙏