Islas Army

09/01/2026

09/01/2026

This Sunday September 6th from 6:00am to 12:00pm you can support Isla by having breakfast🥞 at The Jefferson right here in Strafford🩵

Thank you Sara & Tyler🩵

08/22/2026

🎶Loon Aid for Isla is happening in just 2 weeks!
We are so excited to see everyone on the water, rocking out to our favorite band; Loon Island Music 🎤

Each year this concert brings so many wonderful people together. Isla loves listening to the music and seeing all her friends and family enjoying time together on the lake⚓️

Thank you Mike, for another Loon Aid! We appreciate what you do to make Bow Lake more than just a community 🫶

To make a donation to Isla Saunders:
Venmo

07/01/2026

Isla is doing a bi-weekly Brineura eye injection along with her regular infusion. As of right now she is getting these done rotating Wednesdays and Fridays every 2 weeks.

Researchers have discovered that injecting a small amount of the same enzyme replacement therapy she receives in her brain, directly into the eyes of children with CLN2, may help preserve and maintain vision.

On Wednesdays and Fridays please consider wearing something to Advocate for Batten Disease to keep spreading awareness.

Open to clever hash tags!

06/09/2026

06/09/2026

Today is Batten Disease Awareness day!

05/04/2026

Don’t forget to buy your Batten Disease merch for this years Batten Disease Awareness Day
Isla Strong - Our Journey with Batten Disease, CLN2

🚨🚨 FINAL CALL FOR MERCH 🚨🚨

If you want your “Love Hope Cure” merch to arrive by International Batten Disease Awareness Day on June 9, ORDER NOW: https://ow.ly/A3OH50YOLAb

04/22/2026